"POTS equals uncertainty": exploring uncertainty and privacy management of people with Postural Orthostatic Tachycardia Syndrome (POTS)
Postural Orthostatic Tachycardia Syndrome (POTS) is a rare, incurable, and invisible disability. POTS is an understudied illness in the medical field and even more so in academia. The importance of studying the experiences of people with POTS is to improve the way these individuals, and others with invisible disabilities, negotiate privacy and uncertainty. Privacy and uncertainty are particularly worthy of investigation in studying POTS because people with POTS have to negotiate large amounts of uncertainty and disclosures. This study sought to use the lens of uncertainty and privacy management ...
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