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Alzheimer's disease and family caregiving: loss of the family caregiver role

dc.contributor.authorGentz, Audra, author
dc.contributor.authorFruhauf, Christine A., advisor
dc.contributor.authorQuijano, Louise, committee member
dc.contributor.authorOltjenbruns, Kevin, committee member
dc.coverage.spatialUnited States
dc.date.accessioned2007-01-03T04:43:12Z
dc.date.available2007-01-03T04:43:12Z
dc.date.issued2010
dc.descriptionDepartment Head: Lise Marie Youngblade.
dc.description.abstractFamily caregiving for adults with Alzheimer's disease is an important issue that affects many individuals. When caregivers are no longer caregiving, the loss of the role may impact their life. However, it is unknown in the gerontological literature how the loss of the caregiver role is experienced. The purpose of this research was to understand the loss of the caregiving role of family caregivers who provided assistance to individuals who had Alzheimer's disease. A total of 21 participants, age 41 to 88, participated in one focus group (i.e., three focus groups were conducted with 5 to 10 participants) addressing the loss of their caregiver role. Many participants (i.e., n = 18) were female and were caring for a parent/in-law (i.e., n = 14). A third of caregivers provided care for 5 to 8 years. Qualitative data analysis techniques were used to develop themes and codes to understand the experiences of previous caregivers. Two themes emerged from the data: caregiving journey and standing at a cross-road. Data focusing on the caregiving journey addressed rewards and stumbling blocks of caregiving during and after active caregiving. For example, participants discussed their tools and feelings associated with caregiving. Standing at a cross-road illustrated four sub-themes: unforeseen happenings, unexpected phase of caregiving, caregiver's sense of self, and grief/sadness. Future researchers should consider examining gender differences and the loss of the caregiver role for children versus spouses. Professionals should consider developing support groups or educational materials focusing on the loss of the caregiver identity.
dc.format.mediummasters theses
dc.identifier2010_Summer_Gentz_Audra.pdf
dc.identifierETDF2010200003HDFS
dc.identifier.urihttp://hdl.handle.net/10217/40598
dc.languageEnglish
dc.language.isoeng
dc.publisherColorado State University. Libraries
dc.relation.ispartof2000-2019
dc.rightsCopyright and other restrictions may apply. User is responsible for compliance with all applicable laws. For information about copyright law, please see https://libguides.colostate.edu/copyright.
dc.titleAlzheimer's disease and family caregiving: loss of the family caregiver role
dc.typeText
dcterms.rights.dplaThis Item is protected by copyright and/or related rights (https://rightsstatements.org/vocab/InC/1.0/). You are free to use this Item in any way that is permitted by the copyright and related rights legislation that applies to your use. For other uses you need to obtain permission from the rights-holder(s).
thesis.degree.disciplineHuman Development and Family Studies
thesis.degree.grantorColorado State University
thesis.degree.levelMasters
thesis.degree.nameMaster of Science (M.S.)

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