Repository logo

Parent perspectives of at-home cognitive intervention for preschoolers with Down syndrome

dc.contributor.authorWalsh, Madison M., author
dc.contributor.authorFidler, Deborah, advisor
dc.contributor.authorHepburn, Susan, committee member
dc.contributor.authorYoder, Jamie, committee member
dc.description.abstractDown syndrome (DS) is associated with challenges related to cognitive skills, including executive function (EF). Intervention provided during early childhood can support the development of EF, however there are few cognitive interventions designed for young developmental ages. Parent-mediated interventions (PMIs) are emerging as an effective and scalable intervention approach for clinical populations. PMIs require ongoing parent engagement, and therefore, it is critical for a PMI to meet the needs of its intended users. This study used a community-based participatory research (CBPR) framework to (1) understand the daily routines of families of young children with DS and (2) describe parent perceptions of participating in at-home intervention. Participants were 34 caregivers of children 3 – 6 years old with DS living in Italy or the US. Participants responded to questions related to daily tasks they help their children complete and their perceptions of at-home cognitive intervention. Interviews were transcribed and independently coded (inter-rater agreement = .80). Four themes related to daily routines were identified: what parents help with, how parents help, why parents help, and how children respond. Three themes related to parent perceptions of interventions were identified: advantages of parent-led interventions, disadvantages of parent-led interventions, and desires for interventions. Findings suggest that PMIs targeting preschool-aged children with DS should require a short time commitment, blend intervention activities into daily routines, and include other family members. Findings from this study have important implications for the development of novel interventions aimed at supporting families in this population.
dc.format.mediumborn digital
dc.format.mediummasters theses
dc.publisherColorado State University. Libraries
dc.rightsCopyright and other restrictions may apply. User is responsible for compliance with all applicable laws. For information about copyright law, please see
dc.subjectDown syndrome
dc.subjectfocus groups
dc.subjectexecutive function
dc.titleParent perspectives of at-home cognitive intervention for preschoolers with Down syndrome
dcterms.rights.dplaThis Item is protected by copyright and/or related rights ( You are free to use this Item in any way that is permitted by the copyright and related rights legislation that applies to your use. For other uses you need to obtain permission from the rights-holder(s). Development and Family Studies State University of Science (M.S.)


Original bundle
Now showing 1 - 1 of 1
Thumbnail Image
527.48 KB
Adobe Portable Document Format