Use of complementary therapies for chronic pain management in patients with reported Ehlers Danlos syndrome or hypermobility spectrum disorders
Purpose: Ehlers-Danlos Syndromes (EDS) and related Hypermobility Spectrum Disorders (HSD) are debilitating connective tissue disorders that feature a prominent pain component for which there are limited therapeutic options for pain management. Consequently, many patients try various non-prescribed treatments, including complementary and alternative therapies that have not been well-studied in the EDS/HSD patient population. Methods: We surveyed over 500 individuals through the EDS Society who reported having been diagnosed with EDS or HSD to ascertain what complementary and alternative therapies ...
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