• Rising from the shadows: a Zellweger baby's journey from Hospice to hope 

        Author(s):Holt, Megan
        Date:2017-04
        Format:born digital; presentations (communicative events)
        Madeline is a four-year-old girl who suffers from a terminal genetic disease called Zellweger Syndrome. This disease destroys the white matter of the brain, and most children don’t survive past their first year of life. ...